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G'Day, hope your all great !
Welcome to our first ever Children's Tumour Foundation Golf Day.
The reason we are starting a golf day for the amazing Children's Tumour Foundationis because of Skye & we want to help bring NF out of the shadows because it isn’t a very well-known condition and it is important to bring more awareness to people about NF as it is actually a common condition that can be really severe.
Here is a bit about Skye and why we have decided to dedicate a Golf Day to her and donate the funds to the Children's Tumour Foundation.
Skye was diagnosed at quite a young age with NF1. We started to notice these weird skin spots/discolorations called café au lait spots all over her body and we noticed that she wasn’t developing as quickly as other kids especially with her crawling and talking. Knowing that Skye’s father had NF and what the café au lait spots were, meant that we could go to the doctors and tell them about the symptoms that Skye had and that her father has NF. From there Skye had her first MRI and a blood test during her scan confirming that she had NF.
NF has had a huge impact on Skye’s life and also the people around her. It has hard seeing your daughter struggle with her development and see the frustration she gets when she struggles to do things and when she is trying to tell us something and we can’t understand exactly what she is saying. It takes a toll on you as parent having to make it to all of these appointments and hospital visits and having to see your baby put under anaesthetic to go in for MRI’s, it can be very overwhelming. Skye & her Mum Tara are very lucky to have a lot of family who support them and help with everything that they can.
Skye has had multiple MRI’s done at the Canberra Children’s hospital to monitor the growth of a tumour that was found behind her right eye We found out after her most recent MRI that the tumour has stopped growing if not gotten smaller. This is really good news as it takes a lot of stress away worrying about what if she has to have it removed and she loses her vision in that eye and it also means less hospital visits and less MRI’s and anaesthetic.
We have only very recently come across the CTF and we are looking forward to getting involved in some of the camps and events that CTF holds. It will also be a good opportunity for Skye to meet other children with NF.
This years golf day will be held on Thursday 19th October 2023 at Yowani Country Club, Lyneham ACT.
Please click on the links below or in menu bar for more information.
Cheers & Thank you
Millsy & Jessy
Welcome to the
1st Childrens Tumour Foundation Golf Day 2023
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